Publications and downloads
About CHARGE
This information sheet describes the main features of this condition, the challenges that individuals and families face and where to go for help.
About_CHARGE.pdf
About_CHARGE.txt
About_CHARGE.docAnnual Sense Lecture 2009
The 2009 Sense Annual Lecture: 'The pursuit of happiness', 4 November 2009
2009_Annual_lecture_transcript.pdf 2009_Annual_lecture_transcript.txt 2009_Annual_lecture_transcript.docAnnual Sense Lecture 2010
The 4th Sense Annual Lecture: ‘Education and the senses’, Institute of Physics, 17 November 2010
2010_Annual_lecture_transcript.pdf 2010_Annual_lecture_transcript.txt 2010_Annual_lecture_transcript.docAnnual Sense Lecture 2011
The 5th Sense Annual Lecture: 'An adventure of the senses', Tuesday 15 November 2011, Institute of Physics
2011_Annual_lecture_transcript.pdf 2011_Annual_lecture_transcript.txt 2011_Annual_lecture_transcript.docCHARGE - Supporting parents in the early years
This factsheet has been based upon the experiences and views of a group of parents of children with CHARGE. It offers advice for professionals working with children who have been newly diagnosed with CHARGE.
CHARGE_supporting_parents_in_the_early_years.pdf CHARGE_supporting_parents_in_the_early_years.txt CHARGE_supporting_parents_in_the_early_years.docCHARGE and multi-sensory impairment
This factsheet gives information about multi-sensory impairment and the effects this can have on children and adults with CHARGE syndrome
CHARGE_and_multi_sensory_impairment.pdf CHARGE_and_multi_sensory_impairment.txt CHARGE_and_multi_sensory_impairment.docChildren and Families Bill SEN Provisions: Second Reading Briefing
February 2013
Sense welcomes the overall aims of the Children and Families Bill SEN provisions which seek to introduce integrated assessment and provision for children with Special Educational Needs (SEN).
However, at the Second Reading of the Bill, we are urging Parliamentarians to seek a number of commitments and assurances from the Under Parliamentary Secretary of State for Education, Edward Timpson MP, in order to ensure that the Bill meets the needs of deafblind children and their families.
children_families_2nd_reading_feb2013.pdfChildren and Families event (11 March 2013)
On the 11th March, Sense held an event for deafblind children and their families in Westminster. The event was the first in a series of activities designed to encourage families to share their personal experiences with decision-makers and to call for changes on the issues that affect them.
During the event, families heard about the Government’s planned reforms to the system of Special Educational Needs (SEN) which are currently being enacted through the Children and Families Bill. Families were then invited to share their views about the proposed changes, based upon their experiences of the system so far.
The following paper summarises the views shared by families throughout the day. A summary of key points can be found at the start of each section.
children_families_event_march2013_discussion_points.pdfCyrraedd y nod! (Cymraeg)
Gwybodaeth a syniadau i helpu pobl ifanc â nam amlsynhwyraidd ynghyd â’u teuluoedd i ddeall y broses gynllunio ar gyfer pontio a chwarae rhan lawnach ynddi<br />
Cyrraedd_y_nod.pdf