Sense has developed a series of factsheets, articles and downloadable leaflets that provide further information about living with Usher syndrome and advice for helping people with Usher to live with confidence.

Living with Usher syndrome
An introduction to Usher syndrome and the services Sense offers to support people with Usher and their families.

The experience of parents
Finding out that your child has Usher and helping them to come to terms with this.

The experiences of brothers and sisters
The impact of Usher on the whole family and how to support siblings.

The experience of partners
Finding the best way to support your relationship; deciding whether to have children.

Facts and fiction
Getting some facts straight about Usher.

Mobility and travel
How to get around safely if you have Usher.

Useful tips when you meet someone with Usher

Brief history of Usher syndrome

Factsheets and leaflets on communication and sharing information with deafblind people:

Sense's Talking Sense magazine articles on Usher syndrome

My life as a tightrope walker
A Talking Sense article written by a young mother with Usher describing her experiences

Deafblindness and mental distress
A Talking Sense article about a new research on the mental distress that some deafblind people experience