We Must Not Give Up
Sue Dunnett
Last month, I went to Sense for a social care meeting. I came with my communicator guide, to learn about the social care White Paper and the draft Bill. It was very interesting to know what is going on. I learned from other people's problems, parents and families.
I feel that deafblind people have got a power to fight for our social care, we must not give up, we must fight, that will make us strong. I want the Government to listen to what we have to say and they must change the law.
What we need, for the rest of our lives, is communicator-guides to help us with general basic like hospitals, dentists, doctors, food shopping and clothes shopping. We need more hours because we don't have much activities and socialising like making friends.
If Governments don't change the laws, it will make lots hard in our lives, we can't just go without communicator-guides, because all technologies change like telephone messages from gas, hospital, doctors etc etc. How would we possibly cope with that?
In the future there will be a lot more deafblind children and deafblind adult. I don't want them to suffer like we are now. The Government need to act now.

Comments
Virginia Thornton
4 September 2012 - 3:03pm
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It's really good to hear a deafblind person talking about fighting for change and feeling like you do have the power to do that. Even people who need support to do basic things are working to make the world a better place. I hope you succeed.
Anne
6 September 2012 - 10:38am
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With local authorities raising eligibility criteria and increasing charges for social care, and the proposals for reform of social care set out in the recent White Paper and draft Bill, now is a very scary time for those of us who rely on social care. It feels as though that vital support could be swept away from under our feet at any moment on the whim of a politician or burocrat who knows nothing about the needs of deafblind people. As you so rightly say, we must speak up and fight to protect our rights and for improvements to social care. The Government has to listen. They have to understand that social care reform and funding is about much more than older people having to sell their homes to pay for residential care. It's about younger disabled people, many without financial means, who need support to do the things that most people take for granted. Plus, this Government say they want disabled people to work; we'd love to work but need the right support in all areas of our lives so that we can work. That means social care as well as other support.
Ms Nomer
6 September 2012 - 11:43am
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Abso-bloomin-lutely Sue. Your words "I feel that deafblind people have got a power to fight for our social care, we must not give up, we must fight, that will make us strong." made me give a huge cheer inside. I couldn't agree more. Don't. Give. Up. The. Fight.
Sasha
14 September 2012 - 11:55am
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We need more deafblind people with your determination to fight. We must all do what we can in this battle. We can't give up; our lives depend on it.
Michael Robert Brown
16 September 2012 - 12:14am
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Some really interesting points you have written. Aided me a lot, just what I was looking for : D.
Susie
21 September 2012 - 8:51am
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We must not give up. The current situation is utterly unacceptable. But we should not have to fight to get essential support to do things that most people take for granted. In a civilised society with one of the largest economies in the world (even with the recession) there is no excuse for this woefully inadequate social care system.
Maryann Murphy
23 September 2012 - 12:54pm
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